Department of Health

Website of the Department of Health

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CJD contacts

Contact details for organisations concerned with Creutzfeldt-Jakob Disease (CJD) and Bovine Spongiform Encephalopathy (BSE).

Select a contact

CJD Policy Unit

  • Contact:
    CJD Policy Unit
  • Address:
    Room 630B
    Skipton House
    80 London Road
    London
    SE1 6LH
  • Phone:
    Tel:
    020 7972 5238

CJD Compensation Scheme

  • Contact:
    CJD Compensation Scheme
  • Address:
    Eileen Lawrence
    Room 629D
    Skipton House
    80 London Road
    London SE1 6LH
  • Phone:
    Tel:
    020 7972 5238

Variant CJD Compensation Scheme

  • Contact:
    Variant CJD Compensation Scheme
  • Address:
    Charles Russell Solicitors
    8 – 10 New Fetter Lane
    London
    EC4A 1RS
  • Phone:
    Tel:
    0207 203 5000
  • Fax:
    020 7203 0200
  • Web:
    http://www.charlesrussell.co.uk
  • Responsibilities:
    For information regarding the variant CJD Compensation Scheme

Social Care Policy and Innovation Division

  • Contact:
    Social Care Policy and Innovation Division
  • Address:
    Department of Health
    133-155 Waterloo Road
    London
    SE1 8UG
  • Email:
    SCPI-Enquiries@dh.gsi.gov.uk

Research and Development Unit

  • Contact:
    Research and Development Unit
  • Address:
    Dr John Stephenson
    Room 408A
    Skipton House
    80 London Road
    London SE1 6LH
  • Notes:
    For enquiries regarding research into TSEs, including requests for funding for research projects.

SEAC Secretariat

National CJD Surveillance Unit

  • Contact:
    National CJD Surveillance Unit
  • Address:
    National CJD Surveillance Unit
    Western General Hospital
    Crewe Road
    Edinburgh
    EH4 2XU
  • Phone:
    0131 537 2128
  • Notes:
    The National CJD Surveillance Unit monitors the incidence of CJD in the UK. A case co-ordinator is also based at the Unit, whose role it is to co-ordinate a care package for people with any form of prion disease.

Human BSE Foundation

  • Contact:
    Human BSE Foundation
  • Address:
    99 Warkworth Drive
    Deneside View
    Chester-Le-Street
    Co. Durham
    DH2 3TW
  • Phone:
    Helpline
    0191 389 4157
  • Email:
    info@hbsef.org
  • Notes:
    The Human BSE Foundation offers advice support to CJD patients, their families and friends.

CJD Support Network

  • Contact:
    CJD Support Network
  • Address:
    Gillian Turner
    National CJD Co-ordinator
    CJD Support Network
    P.O.Box 346 Market Drayton
    Shropshire TF9 4WN
  • Phone:
    Helpline
    01630673973
    Admin
    01630673993
  • Email:
    support@cjdsupport.net
  • Web:
    http://www.cjdsupport.net/
  • Notes:
    The CJD Support Network offers support, information, advice and case co-ordination for patients with any form of prion disease.
  • Responsibilities:
    National CJD Co-ordinator

The National Prion Clinic

  • Contact:
    The National Prion Clinic
  • Address:
    Box 98
    The National Hospital for Neurology & Neurosurgery,
    Queen Square
    London
    WC1N 3BG
  • Phone:
    020 7405 0755
  • Email:
    help.prion@uclh.org
  • Web:
    http://www.nationalprionclinic.org/
  • Notes:
    The National Prion Clinic (NPC) provides diagnosis and care for patients with, or suspected of having, any form of human prion disease and works closely with the MRC Prion Unit, based at the Institute of Neurology, Queen Square, London.

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