Website of the Department of Health
Please note that this website has a UK government access keys system.
Page menu
Good Practice Guide and examples
- Quality requirement 1: A person-centred service
- Quality requirement 2: Early recognition, prompt diagnosis and treatment
- Quality requirement 3: Emergency and acute management
- Quality requirement 4: Early and specialist rehabilitation
- Quality requirement 5: Community rehabilitation and support
- Quality requirement 6: Vocational rehabilitation
- Quality requirement 7: Providing equipment & accommodation
- Quality requirement 8: Personal care and support
- Quality requirement 9: Palliative care
- Quality requirement 10: Supporting families and carers
- Quality requirement 11: Caring for people with neurological conditions during admission
- Chapter 3 of the NSF: Neuroscience networks
You are here:
Motor Neurone Disease Care Centre Programme
-
Last modified date:8 February 2007
The Motor Neurone Disease (MND) Association funds a network of twelve MND Care Centres based in regional neuroscience centres. They deliver high quality coordinated assessment and management of care to all people with confirmed or suspected MND in line with the Association's Standards of Care. Each Centre is led by a neurologist with specialist expertise in MND. All employ a Care Centre Coordinator who acts as a key worker and dedicated single point of contact for people with MND and their carers, and some have additional multi-disciplinary therapy and social care input. As tertiary centres they share their expertise with health and social care professionals across the region through individual advice, educational opportunities and local MND special interest groups. The programme was evaluated positively by the Charity Evaluation Services.
The individual centres have developed a number of resources and different ways of working which they are willing to share including:
- fast-track diagnostic clinics,
- taped consultations,
- nurse-led drop-in and post-diagnosis clinics,
- pre-clinic telephone assessments,
- development of advance directives,
- development of preferred place of care for specific use in MND,
- MND care pathways,
- use of critical event analysis to review and update RIG pathway,
- carers' information days,
- links with local ambulance services in the event of a critical incident at home,
- trained volunteers in clinics for information giving and practical help and support,
- training for staff on general wards,
- raining for GPs
Contact:
MND Association helpline on 01604 611870 or e-mail:
Additional links
Overview of the examples
How the examples were chosen and evaluated, and how to submit an example.
Access keys
