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Good Practice Guide and examples
- Quality requirement 1: A person-centred service
- Quality requirement 2: Early recognition, prompt diagnosis and treatment
- Quality requirement 3: Emergency and acute management
- Quality requirement 4: Early and specialist rehabilitation
- Quality requirement 5: Community rehabilitation and support
- Quality requirement 6: Vocational rehabilitation
- Quality requirement 7: Providing equipment & accommodation
- Quality requirement 8: Personal care and support
- Quality requirement 9: Palliative care
- Quality requirement 10: Supporting families and carers
- Quality requirement 11: Caring for people with neurological conditions during admission
- Chapter 3 of the NSF: Neuroscience networks
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Quality requirement 1: A person-centred service
*An asterisk in an example indicates that its approach could be adapted for other long-term conditions.
Quality requirement 1
People with long-term neurological conditions are offered integrated assessment and planning of their health and social care needs. They are to have the information they need to make informed decisions about their care and treatment and, where appropriate, to support them to manage their condition themselves.
Action on Neurology programme
See pages 14-21 and 49-50 of the Action on Neurology report for information on:
Advocacy Initiative, South Devon Branch, MS Society
The South Devon branch of the MS Society reached agreement in 2006 with the local Citizens’ Advice Bureau to manage a post, funded by the branch, to provide 8 hours a week of dedicated support to those affected by MS. This initiative ensures that the local MS community get top quality support from a professional trained by the CAB
*Camden Physical Disability and Brain Injury Team
The team operates a self-referral system and has a 'standby pathway' for people with deteriorating conditions. This enables individuals to initiate a review prompted by a checklist of significant changes or new symptoms.
*Epilepsy Information Network (EIN)
The EIN was established to meet the information needs of people with epilepsy and their carers. It has developed a variety of training packages for volunteers to enable them to provide verbal information about epilepsy in both healthcare settings and in the community. The packages could be adapted for other long-term conditions.
Information Centre, Neurosupport, Liverpool
Neurosupport aims to provide information, advice and support to people with neurological conditions, their families and carers and to raise awareness of neurological conditions. Facilities include a reference library an enquiry service and a support group database.
Motor Neurone Disease (MND) Care Centre, Manchester
The centre runs a fortnightly specialist multidisciplinary outpatient clinic, and has developed methods to communicate with community services that ensure seamless care.
Motor Neurone Disease Care Centre Programme
The Motor Neurone Disease (MND) Association funds a network of twelve MND Care Centres based in regional neuroscience centres. They deliver high quality coordinated assessment and management of care to all people with confirmed or suspected MND in line with the Association's Standards of Care. The individual centres have developed a number of resources and different ways of working which they are willing to share including fast-track diagnostic clinics, nurse-led clinics, taped consultations, development of advance directives and preferred place of care for specific use in MND, MND care pathways and review processes, carers' information days, links with local ambulance services, use of volunteers in clinics, and education for staff in primary and secondary care.
Neurology Outreach Therapy Service, Sheffield
The Neurology Outreach Therapy Service is a multidisciplinary service for people with any neurological condition and their families, that continues to serve individuals in the community after they have been diagnosed.
Neuro-rehabilitation Team, Colchester
The Neuro-rehabilitation Team based at Colchester General Hospital works predominantly in the community, building everyday activity (including interaction with family, friends, other key individuals and the local community) into rehabilitation. The service is jointly funded by health, social care and the voluntary sector.
Northumbria Healthcare Parkinson's Disease Service, Tyne & Wear
The Northumbria Parkinson's Disease (PD) Service was established in 1995 and serves a population of 500,000.There is an open referral policy which includes self-referral.
St. John's Therapy Centre, Wandsworth, London
St. John's Therapy Centre is running a two year Health Improvement Partnership funded project in Wandsworth, which involves joint working between health and social services. The aim is to develop good practice in case management. This will improve the experience of people in Wandsworth of working age with complex neurological/physical disabilities who use the health and community care system.
Further reading
The Neurological Alliance produces an information booklet for people with long-term neurological conditions called 'Getting the Best out of Neurological Services'. It contains useful information about the services that are available and how to access them.
Additional links
Overview of the examples
How the examples were chosen and evaluated, and how to submit an example.
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