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Good Practice Guide and examples
- Quality requirement 1: A person-centred service
- Quality requirement 2: Early recognition, prompt diagnosis and treatment
- Quality requirement 3: Emergency and acute management
- Quality requirement 4: Early and specialist rehabilitation
- Quality requirement 5: Community rehabilitation and support
- Quality requirement 6: Vocational rehabilitation
- Quality requirement 7: Providing equipment & accommodation
- Quality requirement 8: Personal care and support
- Quality requirement 9: Palliative care
- Quality requirement 10: Supporting families and carers
- Quality requirement 11: Caring for people with neurological conditions during admission
- Chapter 3 of the NSF: Neuroscience networks
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Motor Neurone Disease Community Response Team, Warrington
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Last modified date:8 February 2007
The team operates to a model of care described in the Health Advisory Service document Heading for Better Care which describes how care be provided within current services for people with less common conditions such as Early Onset Dementia, Huntington's Disease and Traumatic Brain Injury. In applying this model to people with Motor Neurone Disease (MND), a number of local health and social care professionals and care providers came together to form a project group. All group members have an interest in MND in addition to their wider job roles. The group meets monthly and aims to:
- Share knowledge and offer services and expertise in a variety of fields relevant to people with MND
- Co-ordinate care for specific individuals with MND
- Provide a forum for innovative problem-solving
- Act as a point of contact for anyone involved in the care of a person with MND
- Avoid duplication by planning future care
- Provide consistent information and practice
- Offer support to team members
- Provide a consistent care management approach from diagnosis until end of life,
- Support and educate primary healthcare staff who may only have contact with 1-2 people with MND during their professional career
The team employs a care manager and has a pooled budget which can be used flexibly for provision of equipment, care, education and which avoids delays in provision due to issues over 'whose responsibility'. Other team members continue to be front line staff who work with people with MND as part of their wider job role. An enhanced rate for the provision of domiciliary care for people with complex needs including those with MND has been agreed.
The team are happy to share their experiences of using this model of care to set up and develop their service.
Contact:
Henry Chesterton, the MND Community Response Team, Warrington Social Services. E-mail: hchesterton@warrington.gov.uk Tel: 01925 444289
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