Department of Health

Website of the Department of Health

Please note that this website has a UK government access keys system.

NHS logo

Research and evidence group

  • Last modified date:
    5 March 2007

An NSF for Long Term Conditions group.

Members

  • Robert Anderson - Economic adviser, Department of Health
  • Dr Keith Andrews - Director of the institute of complex neuro-disability, Royal Hospital for Neuro-disability, London
  • Dr Jeffrey Graham - Principal medical officer, Department of Health
  • Nikki Joule - Policy and development manager, Neurological Alliance
  • Carol Lupton - Principal research officer, Department of Health
  • Katherine McPherson - Reader in Rehabilitation, University of Southampton
  • *Lynne Turner-Stokes - Professor of Rehabilitation Medicine, Northwick Park Hospital. Deputy Chair, Long-term Conditions ERG
  • Chris Ward - Rehabilitation physician with research background
  • Diana Whitworth - Chief Executive, Carers UK, Chair of Long-term Conditions ERG

Terms of reference

1. To oversee the gathering of evidence to support the NSF in long term conditions - evidence may take several forms including:

  • Systematic reviews
  • Novel research to address specific identified areas
  • Gathering the views of users, carers and the professionals who support them

2. To review the evidence arising from those sources  and pass it back to the ERG for consideration

3. To assist the working parties  and ERG - where possible with the task of mapping evidence onto the proposed standards. (However, please note that the group is not resourced to provide the type of extensive literature assimilation which is undertaken by NICE and many other national groups in the preparation of guidelines and standards)

4. To identify current gaps in research and explore means by which these could be filled. These may include:

  • Identifying critical areas for future targeted research funding from the R&D programme and other research funding bodies
  • Working in partnership with other stakeholders such as user organisations etc to gather the required data
  • Identifying other possible resources such as research skills in individual departments, marketing research programmes in pharmaceutical companies etc which could help to provide additional data

5. To define the agenda for on-going research during implemntation of the NSF for which funds have been ear-marked by the DH R&D department

Additional links

Related Links

Long-term conditions information strategy

This aims to ensure that implementation of the quality requirements in the National Service Framework (NSF) for Long-Term Conditions is facilitated by the availability of the appropriate information for patients, families and carers, the general public and care professionals.

Additional links

Access keys