Website of the Department of Health

Bagnall A-M,Whiting P, Sowden A, Wright K. Systematic review on the effectiveness of interventions used in the treatment and management of chronic fatigue syndrome/myalgic encephalitis (ME) among adults and children. The NHS Centre for Reviews and Dissemination, University of York.

• The effectiveness of interventions used in the treatment and management of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis (ME) in adults and children (opens new window)

Bazelmans E, Bleijenberg G, Van Der Meer JWM, Folgering H. Physical deconditioning a perpetuating factor in chronic fatigue syndrome? A controlled study on maximal exercise performance and relations with fatigue, impairment and physical activity. Psychol Med 2001; 31: 107-14.

Bell DS. The doctor's guide to chronic fatigue syndrome. Wokingham: Addison Wesley, 1997.

Benjamin JE, Hoyt RC. Disability following post-vaccinal (yellow fever) hepatitis: a study of 200 patients manifesting delayed convalescence. JAMA 1948; 128: 319-24.

Campling J, Campling F. Chronic fatigue syndrome post viral fatigue syndrome - ME your questions answered. Banham, Norfolk: Erskine Press, 2001.

Campling F, Sharpe M. Chronic Fatigue Syndrome (CFS/ME) The Facts. Oxford: Oxford University Press, 2000.

Ciba Foundation Symposium Chronic Fatigue Syndrome J Wiley & Sons Ltd Oct 1993

Colby J. Zoe's win. Essex: Dome Vision, 1999.

De Lorenzo F, Xiao H, Mukherjee M, et al. Chronic fatigue syndrome: physical and cardiovascular deconditioning. QJM 1998; 91: 475-81.

Edwards RHT. Muscle fatigue and pain. Acta Med Scand Suppl 1986; 711: 179-88.

Ernst E, Eisenberg D. The desktop guide to complementary and alternative medicine. New York: Harcourt Publishers, 2001.

Evengard B, Schacterle RS, Komaroff AL. Chronic fatigue syndrome: new insights and old ignorance. J Intern Med 1999; 246: 455-69.

Fischler B, Dendale P, Michiels V, Chydts R, Kaufman L, De Meirleir K. Physical fatiguability in chronic fatigue syndrome: association with disability, somatisation, and psychopathology. J Psychosom Res 1997; 42: 369-78.

Fox R, ed, for the Linbury Trust. A research portfolio on chronic fatigue syndrome. London: Royal Society of Medicine Press, 1998.

Frackowiak R, Wessely S, eds, for the Linbury Trust. New research ideas in chronic fatigue. London: Royal Society of Medicine Press, 2000.

Franklin A. How I manage chronic fatigue syndrome. Arch Dis Child 1998; 79: 375-78.

Franklin A, Sykes R. Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) in children and young people. Bristol: Westcare, 1999.

Fukuda K Straus S, Hickie I, et al. The chronic fatigue syndrome. a comprehensive approach to its definition and study. Ann lntern Med 1994; 121: 953-59.

Fulcher KY, White PD. Strength and physiological response to exercise in patients with chronic fatigue syndrome. J Neurol Neurosurg Psychiatry 2000; 69: 302-07.

Garralda E, Cronk EM. Chronic fatigue syndrome: helping children and adolescents. Association for Child Psychology and Psychiatry: Occasional Papers, 1995: No.16

Garralda ME. Practitioner review: assessment and management of somatisation in childhood and adolescence: a practical perspective. J Child Psychol Psychiatry 1999; 40: 1159-67.

Garralda ME. Severe chronic fatigue syndrome in childhood: a discussion of pyschopathological mechanisms. Eur Child Adolesc Psychiatry 1992; 1:111-18.

Garralda, ME Rangel LA. Childhood chronic fatigue syndrome. Am J Psychiatry 2001; 158: 1161.

Garralda ME, Rangel L, Levin M, Roberts H, Ukoumunne O. Psychiatric adjustment in adolescents with a history of chronic fatigue syndrome. J Am Acad Child Adolesc Psychiatry 1999; 38: 1515-21.

Gunn W J, Connell D B, Randall B. Epidemiology of chronic fatigue syndrome: the Centers for Disease Control study. In: Bock B, Whelan J, eds. Chronic fatigue syndrome. New York: Wiley: 1993, 83-101.

Hamilton WT, Hall GH, Round AP. Frequency of attendance in general practice and symptoms before development of chronic fatigue syndrome: a case-control study. Br J Gen Pract 2001; 51: 553-58.

Holmes G, Kaplan J, Gantz N, et al. Chronic fatigue syndrome: a working case definition. Ann lntern Med 1988; 108: 387-89.

Hyde BM, Goldstein J, Levine P. The clinical and scientific basis of myalgic encephalomyelitis chronic fatigue syndrome. Ottawa: Nightingale Research Foundation, 1992.

Jacobs G. The natural way chronic fatigue syndrome. Shaftesbury: Element, 1997.

Jason LA, Richman JA, Rademaker AW, et al. A community-based study of chronic fatigue syndrome. Arch Intern Med 1999; 159: 2129-37.

Jason L, Richmond J, Friedberg F, Wagner L, Taylor R, Jordan K. Politics, science and the emergence of a new disease. Am Psychol 1997; 52: 973-83.

Komaroff AL. The biology of chronic fatigue syndrome. Am J Med 2000; 108: 169-71.

Lloyd AR, Hickie I, Peterson PK,et al. Chronic fatigue syndrome: current concepts of pathogenesis and treatment. Curr Clin Top Infect Dis 1999; 19: 135-59.

National Task Force on Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis. Bristol:Westcare: 1994.

National Task Force on NHS Services for people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. Bristol:Westcare: 1998.

National Task Force on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis in Children and Young People Bristol:Westcare: 1999

Macintyre A. ME chronic fatigue syndrome: a practical guide. London: Thorsons Health, 1998.

Packer TL, Foster DM, Brouwer B. Fatigue and activity patterns of people with chronic fatigue syndrome. Occup Ther Res J 1997; 17: 186-99.

Patarca-Montero R, Mark T, Fletcher MA, Klimas NG. Immunology of chronic fatigue syndrome. J Chron Fatigue Syndr 2000; 6: 69-107.

Paul L, Wood L, Behan W, Maclaren W. Demonstration of delayed recovery from fatiguing exercise in chronic fatigue syndrome. Eur J Neurol 1999; 6: 63-69.

Pinching AJ. Chronic fatigue syndrome. Prescribers' J 2000; 40: 99-106.

Ramsay M. Myalgic encephalomyelitis and post fatigue states - the saga of Royal Free disease. London: Gower Medical Publishing, for the ME Association, 1998.

Rangel L, Garralda E, Levin M, Roberts H. Personality in adolescents with chronic fatigue syndrome. Eur Child Adolesc Psychiatry 2000; 9: 39-45.

Rangel L, Garralda ME, Levin M, Roberts H. The course of severe chronic fatigue syndrome in childhood. J Roy Soc Med 2000; 93: 129-34.

Rangel L, Rapp S, Levin M, Garralda ME. Chronic fatigue syndrome: updates on paediatric and pyschological management. Curr Paediatr 1999; 9: 188-93.

Riley MS. Aerobic work capacity in patients with chronic fatigue syndrome. BMJ 1990; 301: 953-56.

Royal Colleges of Physicians, Psychiatrists, and General Practitioners. Chronic fatigue syndrome. Report of a Joint Working Group. London, 1996.

Sharpe M. Cognitive behaviour therapy for the chronic fatigue syndrome: a randomised controlled trial. BMJ 1996; 312: 22-26.

Sharpe M, Archard L, Banatvala J, et al. Guidelines for the conduct of research into the chronic fatigue syndrome. J Roy Soc Med 1991; 84: 118-21.

Shephard RJ. Chronic fatigue syndrome. Sports Med 2001; 31: 167-94.

Shepherd C. Guidelines for the care of patients (revised April 1995), 2nd edition. Stanford le Hope, Essex: The ME Association, 1995.

Shepherd C. ME/CFS/PVFS: An exploration of the key clinical issues. Stanford le Hope, Essex: ME Association, 2001.

Shepherd C, Chaudhuri A. ME/CFS/PVFS: an exploration of the key clinical issues, Stanford le Hope, Essex: The ME Association, 2001.

Speight ANP, Kumar P, Sabai J. Paediatric chronic fatigue syndrome in one Health Authority - epidemiology, spectrum of severity and natural history. Archives of Disease in Childhood. April 2000 Vol 82 Pg.A55 No. G215

Teitelbaum JE, Bird B, Greenfield RM, Weiss A, Muenz L, Gould L. Effective Treatment of Chronic Fatigue Syndrome and Fibromyalgia - A Randomised, Double- Blind, Placebo-Controlled, Intent-To-Treat Study. 2001 Vol 8 No.2 The Journal of Chronic Fatigue Syndrome

• Chronic fatigue syndrome: state of the science conference, October 23-24, 2000. (opens new window)

United States General Accounting Office. Chronic fatigue syndrome CDC and NIH research activities are diverse. Report to the Honourable Harry Reid, U.S. Senate, Washington DC: United States General Accounting Office, 2000 (GAO/HEHS-00-98)

• Chronic Fatigue Syndrome: CDC and NIH Research Activities Are Diverse, but Agency Coordination Is Limited (opens new window)

US National Institute of Allergy and Infectious Diseases National Institute of Health. Chronic Fatigue Syndrome Information for Physicians. Washington DC: Public Health Service US Department of Health and Human Services. 1996

Wessely S, Hotopf M, Sharpe M. Chronic fatigue and its syndromes. Oxford: Oxford University Press, 1998.

White PD. The role of physical inactivity in the chronic fatigue syndrome. J Pyschosom Res 2000; 49: 283-84.

White P, Thomas J, Amess J, Grover S, Kangro H, Clare A. The existence of a fatigue syndrome after glandular fever. Psychol Med 1995; 25: 907-16.

• Chronic fatigue syndrome - Australian clinical practice guidelines (opens new window)

World health Organization. International statistical classification of diseases and related health problems 1994, Geneva.

Material submitted to the Working Group

BRAME. Report on Second World Congress on Chronic Fatigue Syndrome and related disorders, Brussels, 9-12 Sept 1999.

Action For ME. Severely neglected ME in the UK. March 2001.

Colby J, Franklin A, Macintyre A, Michell L, Moss J, Siner J, Speight N. Children with ME: a report by an independent group of advisors, Briefing of the CMO's Working Group on CFS/ME. February 1999.

Cooper L. Report on survey of members of local ME Groups. London: Action for ME and the ME Association 2000.

Dowsett EG, Jones DM.The organic basis of CFS/ME: myalgic encephalomyelitis/ chronic fatigue syndrome. March, 1998. Presentation to CMO.

Dowsett EG. What Is ME/CFS? A short introductory leaflet. 1998. Stock: Young Action Online

• Young Action Online document (opens new window)

Edwards M, Robertson K, Barton C. Chronic fatigue syndrome/ME sufferers in Sussex: their needs and experiences of local health care provision. ME Association (Sussex), 1999.

Grace-Lidstone A. Whispered words. Chelmsford: Tymes Trust, 2001.

Jones DM. Results of independent studies on ME/CFS/MCS patients. International conferences and elsewhere in the period May, 1994, and September, 1999 (Sept 2000). Independent researcher: Ilford, Essex.

Jones DM. Follow up survey of ME/CFS/MCS patients: contribution to the CMO's Working Group on CFS/ME. 5 Apr 2001. Independent researcher: Ilford, Essex.

Jones DM. Summaries of recent survey results: proposal for more comprehensive thyroid - and adrenal function tests in CFS/ME. 19 May 2001. Independent researcher: Ilford, Essex.

Orchard Centre. Understanding fatigue illness. 1998.

Osborne V, Khan S. A report: experiences of black and ethnic minorities with ME and chronic fatigue syndrome (CFS). London: AYME and Samec Trust Research Centre, 2000.

Pheby D, report prepared on behalf of Working Group. Working Group on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis - scoping report: an overview of the research literature.

Sleator A. The House of Commons Research Paper 98/107 Chronic Fatigue Syndrome/ME.

Sykes R, Campion P. The physical and the mental in chronic fatigue syndrome/ME: providing psychological support and achieving effective practitioner-patient partnerships. Draft Report. June 2001.

Tucker S,Tahim C. Speaking up: an examination of the experiences of children and young people with ME. March 2000. London AYME and Open University School of Health & Social Welfare.

25% ME Group. ME questionnaire results: Analysis completed in July 2000. Scotland: 25% ME Group.

The Working Group are grateful to the many other people, too many to name who have written letters and papers and have also assisted the group.

Government publications

Department of Health

Department of Health

Welfare of Children and Young People in Hospital. London: HMSO 1991.

Child Health in the Community: A Guide to Good Practice. NHS Executive, London, 1996.

A first class service: quality in the new NHS. Department of Health. 1998.

Saving Lives: Our Healthier Nation. Department of Health: London: The Stationery Office CM 4386. 1999.

Committee on the Rights of the Child. Convention on the rights of the child: Second Report to the UN Committee on the Rights of the Child by the United Kingdom: Executive Summary. Social Care Group, Department of Health/United Nations. London: The Stationery Office, 1999

• Convention on the Rights of the Child: Second report to the UN Committee on the Rights of the Child by the United Kingdom - executive summary

Working Together to Safeguard Children: a guide to inter-agency working to safeguard and promote the welfare of children. Department of Health, Home Office, Department for Education and Employment London:The Stationery Office, 1999.

• Framework for the assessment of children in need and their families - pack

The NHS Plan: a plan for investment, a plan for reform. Department of Health. London:The Stationery Office, 2000 (Cm. 4818-I).

The Expert Patient: a new approach to chronic disease management for the 21st Century. Department of Health. London. 2001.

• The expert patient: a new approach to chronic disease management for the 21st century

Reference Guide to Consent for examination or treatment. Department of Health London:The Stationery Office, 2001.

Joint Circular 14/96 - Supporting Pupils With Medical Needs London: Department for Education and Employment Department of Health 1996

• Supporting pupils with medical ne (opens new window)

Department for Education and Skills

Department for Education and Skills

Acess to Education for children and young people with medical needs Guidance:DfES 0732/2001. DoH HSC 2001/019. LAC (2001)27 (ISBN 1841856223. Available from DFES Publications, PO Box 5050, Sherwood Park, Annesley, Notts. Telephone 0845 6022260; Fax 0845 6033360)

Education of Young People in Public Care LAC(2000)13. Department for Education and Employment & Department of Health.

Promoting Children's Mental Health within Early Years and Schools Settings. Department for Education and Skills. June 2001

SEN Draft code of Practice Special Educational Needs Code of Practice. Department for Education and Employment. 2000

A Good Practice Guide - Supporting Pupils With Medical Needs: London: Department for Education and Employment

• Supporting pupils with medical needs (opens new window)

Joint Circular 14/96 - Supporting Pupils With Medical Needs London: Department for Education and Employment Department of Health 1996