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Mapping the capacity and potential for User-led Organisations (ULO) in England

  • Document type:
    Report
  • Author:
    Sue Maynard Campbell with Alice Maynard and Maggie Winchcombe - for the Department of Health
  • Published date:
    19 September 2007
  • Primary audience:
    Health and social care professionals
  • Gateway reference:
    not required
  • Copyright holder:
    Crown

This research report presents the main findings of a national research study to obtain up to date information about local User-led Organisations and Centres for Independent or Integrated Living in England.

The full report is available here in audio form, with a text version in Portable Document Format (PDF).

Full report - text version in Portable Document Format

Full report in MP3 audio format

Track 1 contains:

Navigation through audio version.

Track 2 contains:

About this Report.
About the authors.

Track 3 contains:

Executive summary.

Track 4 contains:

Section One: Introduction to the Study

1.1 Background to the study.
1.2 Key questions.
1.3 Study design.
1.4 Related work.

Track 5 contains:

Section Two: The Study in Context

2.1 The Independent Living Movement.
2.2 Definitions and assumptions.

Track 6 contains:

Section Three: The Current State of Play

3.1 Definitions emerging from the Study.
3.2 How many ULOs are there?

Track 7 contains:

3.3 CILs: identified within the local snapshot areas.
3.4 Comparison with the broader voluntary sector.
3.5 Analysis of case study responses.
3.6 Different models of local user-led organisations.

Track 8 contains:

3.7 Focus of Organisations’ Activity.
3.8 Governance Arrangements.

Track 9 contains:

3.9 Funding arrangements.
3.10 Key Characteristics of local user-led organisations.

Track 10 contains:

3.11 Skills and expertise within local user-led organisations.

Track 11 contains:

3.12 Critical Success Factors.
An example of a thriving CIL.

Track 12 contains:

3.13 Added value/uniqueness of ULOs.
3.14 Barriers to progress.
3.15 Lack of consensus as to what a ULO modelled on existing CILs might look like.

Track 13 contains:

Section Four: Conclusions

4.1 Obtaining a response to the key questions.
4.2 The nature and capacity of existing ULOs in England.
4.3 Factors that appear to affect ULOs’ sustainability and effectiveness.
4.4 Factors that appear to inhibit or facilitate the existence of local ULOs, modelled on existing CILs.
4.5 How existing local user-led organisations might contribute to the development of local ULOs.

Track 14 contains:

Section Five: Recommendations for Future Development

5.1 Work with local authorities to promote best practice in the facilitation of ULO development.
5.2 Capacity building ULOs.
5.3 More in depth work on funding issues.
5.4 Core for involvement.
5.5 Cost Analysis.
5.6 Dissemination of this report.

Track 15 contains:

References.

Track 16 contains:

Appendix One.

Executive Summary in MP3 Audio

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